So, I know that getting info from here isnt the same as an official diagnosis, but doctors have been absolutely useless. I am still looking for a diagnosis that fits but it don’t really find anything. I would welcome any person with ideas where to look for more info.

15 months ago, I had an infection, though I tested negative for Corona several times.

Afterwards I got flu like symptoms and didn’t get better until I crashed a few weeks later.

After Several Months with strong Fatigue, Nausea, ME/CFS like Symptoms, where I barely could leave the house I was doing okay ish. Then Symptoms got worse again and I developed ChronicPain in in Muscles and Joints all over my body. It somehow seemed connected to eating but it took a long time to realize that it is connected to Histamin.

So thats where I’m at: I thought it might be mcas, but my “only” symptom after eating anything with histamin is pain and fatigue. It doesn’t really fit the “allergic reaction” I see described as typically for mcas. My body also reacts super fast on anything, with histamin. I don’t even have to swallow sometimes to feel the pain train starting. Histamin blocker help a lot, but any Histamin-Food is off the table.

Then I thought It might be fibromyalgia, because the pain seems really similar, but again it is connected to Histamin-Food, and doesn’t fit anything I read online.

I would appreciate some comments from mcas/fibromyalgia people a lot, otherwise I’m at a loss what it could be -.-

A yes, one more thing: I am now completely unable to take any stimulants because of nausea. So, Coffey, Tee and ADHD meds are off the table. :/

  • surewhynotlem@lemmy.world
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    5 days ago

    DAO enzyme deficiency? Simulants can inhibit DAO and cause nausea.

    Do antihistamine help?

    Remember Hickam’s Dictum. A patient can have multiple problems at once. You don’t need to explain all the symptoms with one illness.

    • MaryReads@lemmy.cafeOP
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      4 days ago

      DAO enzyme deficiency is too slow. I I have pain reactions instantly. Like I have reactions just from putting stuff in my mouth, if it has a lot of Histamin, lol

      Antihistaminika DO help, massive improvement once I figured it out.

      Thanks for your answer!