So, I know that getting info from here isnt the same as an official diagnosis, but doctors have been absolutely useless. I am still looking for a diagnosis that fits but it don’t really find anything. I would welcome any person with ideas where to look for more info.

15 months ago, I had an infection, though I tested negative for Corona several times.

Afterwards I got flu like symptoms and didn’t get better until I crashed a few weeks later.

After Several Months with strong Fatigue, Nausea, ME/CFS like Symptoms, where I barely could leave the house I was doing okay ish. Then Symptoms got worse again and I developed ChronicPain in in Muscles and Joints all over my body. It somehow seemed connected to eating but it took a long time to realize that it is connected to Histamin.

So thats where I’m at: I thought it might be mcas, but my “only” symptom after eating anything with histamin is pain and fatigue. It doesn’t really fit the “allergic reaction” I see described as typically for mcas. My body also reacts super fast on anything, with histamin. I don’t even have to swallow sometimes to feel the pain train starting. Histamin blocker help a lot, but any Histamin-Food is off the table.

Then I thought It might be fibromyalgia, because the pain seems really similar, but again it is connected to Histamin-Food, and doesn’t fit anything I read online.

I would appreciate some comments from mcas/fibromyalgia people a lot, otherwise I’m at a loss what it could be -.-

A yes, one more thing: I am now completely unable to take any stimulants because of nausea. So, Coffey, Tee and ADHD meds are off the table. :/

  • BruceLee@sopuli.xyzEnglish
    1·
    2 days ago

    Did you look for largely milder chronical symptoms in your family members?
    Some hereditary diseases can grow bigger with no warning at some point of life but they might be a lot of clues from the inconvieniences you and your relatives experienced in a daily basis that were overlook because it never handicaped your life much and it seems like something normal as you experience it your whole life, and you saw people around you experience it too.

    Good luck with having a diagnostic. It’s not a cure but it’s a big step.